Today, is the 6 month anniversary of when I went into the hospital. I've really came a long way from where I was at. However, I have pain and fatigue everyday. There are still lots of limitations in my daily activities. The past two days I have been traveling, walking, shopping, traveling, walking, shopping, traveling......did I mention walking? lol! I've been to 3 states this weekend. To be honest with you I don't think I could ever explain or describe the degree of pain I experience to any extent. That would almost be the same for the fatigue. I get past the point of tired, and into anger. Speaking of anger, I've been having quite a bit of it. I don't know if you know what RA (rheumatoid arthritis) feels like. I guess when I first started having pain in my pointer finger back in 2007 I told my mom that it felt like it was broken (yes I've had a broken bone before). Anyways it's pretty excruciating. So, think about a back ache, a head ache, sprained ankles ect, and having that pain all the time. Wouldn't that rub you the wrong way, just a bit? I woke up yesterday and my fingers, shoulders, toes, and back all hurt BAD!! I almost feel asleep during church. I also cried during church. The pain is so draining, both emotionally and physically. Today I took all the pain meds that I could and had my mom push me around in a wheelchair through a couple of stores. I was just getting too weak and tired. I found out this weekend that I still can't manage the crouching position. I went down to look in a glass case at a store and had to ask my mom to retrieve me. It's hard to see myself at this place because I have had better days, but you never know what the next day will hold. Just because I am out of the hospital that doesn't mean that I am all the sudden better. I still take 7-10 pain meds 3 times daily. I ice my back and put all kinds of different muscle rubs on it. I've been going to physical therapy 3x a week since May. I've seen Rheumatologists, Neurologists, and Optomologists. I'm in pain, pain and more pain 24/7 for the past 6 months now. I'm not saying there isn't improvement, I can walk! PRAISE THE LORD!!!!
Goodnight! Mallory
Flowers don't last forever: Gardens are a process but the rewards are worth it. Even the Caterpillar thinks it has reached it's end; a cocoon which is trying&stretching but really faith growing that enables u to fly when it's time for u to b a Beautiful Butterfly. There is hope after pain! This journey through life with my Faith and Trust in the True Savior Jesus Christ I can rest assured that He is in control. He can make a way when there seems to be no way. ISAIAH 61:3
Monday, October 11, 2010
Holding on, Holding Strong.....God's Promises Are New Every Morning!
Labels:
Acute Transverse Myelitis,
Lupus,
PAIN
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